RFK is a dangerous lunatic. The only things he would use that data for that I can think of are inhumane „experiments“ on no scientific basis and mass sterilizations. This is bad. This is very very bad.
“The idea of the platform is that the existing data resources are often fragmented and difficult to obtain. The NIH itself will often pay multiple times for the same data resource. Even data resources that are within the federal government are difficult to obtain,”
Yeah, there’s a reason for that.
Medication records from pharmacy chains, lab testing and genomics data from patients treated by the Department of Veterans Affairs and Indian Health Service, claims from private insurers and data from smartwatches and fitness trackers will all be linked together, he said. The NIH is also now in talks with the Centers for Medicare and Medicaid Services to broaden agreements governing access to their data
So all those promises that our medical data is sacred were just lies, got it.
In addition, a new disease registry is being launched to track Americans with autism, which will be integrated into the data.
Preparatory steps to shipping people with autism off to camps.
Between 10 and 20 outside groups of researchers will be given grant funding and access to the records to produce Kennedy’s autism studies. Bhattacharya did not give details on how they would be chosen, but said their selection would be “run through normal NIH processes.”
Yeah, right, lmao.
the research they will back using the data will be “the highest quality proposals” that will range “from basic science to epidemiological approaches, to other more applied approaches” to treat and manage autism.
Yeah, it’s the ‘other, more applied approaches’ that’ll send people to camps.
He also acknowledged autism’s wide variation in how it affects people. “I recognize, of course, that autism, there’s a range of manifestations ranging from highly functioning children to children that are quite severely disabled. And of course the research will account very carefully for that,” he said.
The research might (I doubt it), but the people using it won’t. They’ll use DOGE- and ICE-like levels of discrimination to target everyone they can.
While the selected researchers will be able to access and study the private medical data, Bhattacharya said they will not be able to download it. He promised “state of the art protections” to protect confidentiality.
Fucking bullshit lies, that is.
By bringing the data into one place, he said it could give health agencies a window into “real-time health monitoring” on Americans for studying other health problems too.
Yeah, that’s not scary, either.
“What we’re proposing is a transformative real-world data initiative, which aims to provide a robust and secure computational data platform for chronic disease and autism research,” he said.
I bet you had AI generate that meaningless slop, didn’t you. Sounds good, but meaning fucking nothing. Fucking Nazis.
can someone give summary what’s going on there?
The US government is gathering up as much data on who’s autistic for research apparently.
thanks. I guess not for a scientific purposes
Can we not autoplay videos please?
It doesn’t autoplay for me. What Lemmy client are you using?
Same, and I’m using a Firefox based browser.
Web browser.
Please change your link. This is an autism comm. People have AV sensitivities.
Edit: to clarify please remove the embed link in your post as it auto plays for those using browser who want to read or make comments. Keep the article so people can discuss it’s merits if they choose.
Sorry but if you don’t like autoplay, it’s your responsibility to disable that on your device. Here’s how to do it in firefox:
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Open Firefox.
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Go to Settings:
- Click the menu button (three horizontal lines in the top-right).
- Select Settings (or Preferences on macOS/Linux).
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In the left sidebar, select Privacy & Security.
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Scroll down to the Permissions section.
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Next to Autoplay, click Settings.
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Change the dropdown at the top to Block Audio and Video.
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Click Save Changes.
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Please keep it civil here