Summary

RFK Jr. is using private medical records to create a registry of people with autism in the United States.

The National Institutes of Health is helping to collect private medical records from government and commercial databases, including “prescription records from pharmacies, lab testing, and genomics records from the Department of Veterans Affairs and Indian Health Service, private insurance claims, and data from smartwatches and fitness trackers.”

Kennedy, a longtime critic of vaccination, has made the study of autism one of HHS’s primary goals. He has called autism “preventable” and claimed “he can find a cure for the condition by September.”

  • Zippygutterslug@lemmy.world
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    11 hours ago

    Lists are not neutral; they are tools of social hierarchy and ideological enforcement.

    Creating a national database of autistic people could grow from “support services” to stigmatizing surveillance or work farms—especially if the one proposing it has a history of pseudoscientific views or conspiracy ideation, as RFK Jr. does.

    • marketsnodsbury@lemm.ee
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      5 hours ago

      Work farms? No no no— these are wellness farms! Completely different! The labor will be very therapeutic! Plus, if we determine you’re taking medication for any co-occurring disorders, like ADHD or depression we’ll get you clean of that crippling addiction pronto.

      :/